Philadelphia: Wife Shares How Couple Refuses to Give Up Travel After Husband’s Alzheimer’s Diagnosis

Anthony and Karen Sandone, avid travelers who married in Punta Cana in 2009, never imagined their lives would be altered so drastically. In 2023, Anthony was diagnosed with early-onset Alzheimer’s at 55, after months of unanswered questions and exhausting doctor visits.

From Forgetfulness to Life-Altering Diagnosis

What began as small lapses in memory and speech grew into persistent cognitive challenges. By May 2023, Anthony was forced to retire from his 35-year career in chemical sales. Four months later, the diagnosis they feared was confirmed.

Now 57, Anthony is living with primary progressive aphasia, a form of the disease that impacts language and communication. His wife Karen, 58, has stepped into the role of full-time caregiver while balancing her own career.

Daily Challenges and Emotional Turning Points

Everyday tasks — like remembering names, following instructions, or using a remote — have become difficult. One of the hardest moments came when Karen had to tell Anthony he could no longer drive. “It made him feel like everything was being taken from him,” she recalls.

Anthony’s illness has also affected their blended family of six adult children, who’ve had to adjust to the changes in his memory and abilities.

Holding Onto What Matters: Travel

Despite the challenges, Anthony and Karen have refused to give up one passion: travel. It has been their escape and joy, especially as empty nesters. They’ve explored Puerto Vallarta, Hawaii, Italy, Greece, and more.

Cruises, in particular, have become their safest and most enjoyable option. Karen ensures safety by arranging accommodations, alerting staff, and equipping Anthony with a medical-alert Apple Watch and dementia ID. “Even with repeated questions and confusion, we found joy in simply being together,” she says.

No Regrets, Only Memories

Karen admits she nearly canceled their most recent trip out of fear. But when asked if she would regret not going, her answer was yes. That moment strengthened her resolve. “I don’t know if that was our last trip, but I have no regrets,” she shares.

Advocacy Beyond Their Journey

Karen has also taken her fight public. She represented the Alzheimer’s Impact Movement (AIM) in Washington, D.C., lobbying Congress for continued funding and awareness.

Her advice for others facing Alzheimer’s: “Meet your loved one where they are, in the moment.”

Though Alzheimer’s has changed their marriage, Karen still sees Anthony as her husband and best friend. Together, they continue to cherish the time they have.